Family Burden of Schizophrenia in Pasung During COVID-19 Pandemic: A Scoping Review
= http://dx.doi.org/10.24990/injec.v5i2.315
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Abstract
Introduction: The long-term care in schizophrenia patients can cause care burdens, which will relate to the family's decision to do pasung. The perceived burden will be even heavier because of the COVID-19 pandemic. This review aims to identify the family care burden affecting pasung in schizophrenic patients during the COVID-19 pandemic. Methods: This scoping review was conducted by searching four databases, namely ProQuest, Science Direct, and EBSCO, and Google Scholar in the past ten years. This study uses the PRISMA 2009 protocol in filtering articles from the database. Researchers summarize based on the significance value for quantitative research, based on themes’ qualitative research, and discussed factors mentioned which may influence the family. Thus, we obtained 15 articles for final review. Results: The results obtained that the subjective burden felt by the family is a feeling of worry and sadness due to the patient's aggressive behavior and the safety of the patient, family, and environment. The objective burdens most felt by families are financial burdens, both medical costs, transportation to reach mental health services, and the cost of daily living. The COVID-19 pandemic will affect both types of care burdens, thereby affecting the quality of care for families with schizophrenia patients in pasung. Conclusion: Schizophrenia patients are one of the populations that are vulnerable to COVID-19. Nurse plays a role in the ability to overcome the burden of schizophrenia care and improve adaptation to the current pandemic to create optimal mental health in the community.
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Amagai, M., Takahashi, M., & Amagai, F. (2016). Qualitative study of resilience of family caregivers for patients with schizophrenia in Japan. Mental Health in Family Medicine, 12(4), 307-312.
Andreasen, N.C., & Black, D.W. (2006). Introductory textbook of psychiatry (4th ed.). Washington, DC: American Psychiatric Publishing, Inc.
Arun, R., Inbakamal, S., Tharyan, A., & Premkumar, P.S. (2018). Spousal caregiver burden and its relation with disability in schizophrenia. Indian J Psychol Med, 40, 22-28. doi: 10.4103/IJPSYM.IJPSYM_204_17
Asher, L., Fekadu, A., Teferra, S., De Silva, M., Pathare, S., & Hanlon, C. (2017). “I cry every day and night, I have my son tied in chains”: physical restraint of people with schizophrenia in community settings in Ethiopia. Globalization and Health, 13(14), 1-14. doi: 10.1186/s12992-017-0273-1
Astuti, M. (2017). Kondisi orang dengan gangguan jiwa pasung, keluarga dan masyarakat lingkungannya di Kabupaten 50 Kota. Sosio Konsepsia: Jurnal Penelitian dan Pengembangan Kesejahteraan Sosial, 6(3), 256-268. doi: 10.33007/ska.v6i3.1000
Bhat, B.A., Khan, S., Manzoor, S., Niyaz, A., Tak, H.J., Anees, S-U.M., . . . Ahmad, I. (2020). A study on impact of COVID-19 lockdown on psychological health, economy and social life of people in Kashmir. International Journal of Science and Healthcare Research, 5(2), 36-46.
Buanasari, A., Daulima, N.H.C., & Wardani, I.Y. (2018). The experience of adolescents having mentally ill parents with pasung. Enfermería Clínica, 28(Supl 1 Part A), 83-87. doi: 10.1016/S1130-8621(18)30043-3
Daulima, N.H.C., Rasmawati, & Wardani, I.Y. (2019). Penurunan kemampuan kepala keluarga dalam memenuhi kebutuhan ekonomi keluarga: Studi fenomenologi pengalaman orang dengan gangguan jiwa paska pasung. Jurnal Keperawatan Indonesia, 22(2), 139–146. doi: 10.7454/jki.v22i2.873
Dewi, A.R., Daulima, N.H.C., & Wardani, I.Y. (2019). Managing family burden through combined family psychoeducation and care decision without pasung therapies. Enfermería Clínica, 29(52), 76-80. doi: 10.1016/j.enfcli.2019.04.012
Druss, B.G. (2020). Addressing the COVID-19 pandemic in populations with serious mental illness. JAMA Psychiatry. doi: 10.1001/jamapsychiatry.2020.0894
Firdaus. (2016). Pemenuhan Hak Atas Kesehatan Bagi Penyandang Skizofrenia di Daerah Istimewa Yogyakarta. Jurnal Ilmiah Kebijakan Hukum, 10(1), 87-103. doi: 10.30641/kebijakan.2016.V10.87-103
Greene, J., Cohen, D., Siskowski, C., & Toyinbo, P. (2017). The relationship between family caregiving and the mental health of emerging young adult caregivers. The Journal of Behavioral Health Services & Research, 44(4), 551-563. doi: 10.1007/s11414-016-9526-7
Gugus Tugas Percepatan Penanganan COVID-19. (2020). Data Sebaran. Retrieved 1 July, 2020, from https://covid19.go.id/
Hall, T., Kakuma, R., Palmer, L., Minas, H., Martins, J., & Kermode, M. (2019). Social inclusion and exclusion of people with mental illness in Timor-Leste: a qualitative investigation with multiple stakeholders. BMC Public Health, 19:702. doi: 10.1186/s12889-019-7042-4
Hamada, K., & Fan, X. (2020). The impact of COVID-19 on individuals living with serious mental illness. Schizophrenia Research, xxx(xxx). doi: 10.1016/j.schres.2020.05.054
Hartini, N., Fardana, N.A., Ariana, A.D., & Wardana, N.D. (2018). Stigma toward people with mental health problems in Indonesia. Psychology Research and Behavior Management, 11, 535–541. doi: 10.2147/PRBM.S175251
Holmes, E. A., O’Connor, R., Perry, V., Tracey, I., Wessely, S., Arseneault, L., . . . Bullmore, E. (2020). Multidisciplinary research priorities for the COVID-19 pandemic: A call for action for mental health science. Lancet Psychiatry, 7, 547-560. doi: 10.1016/S2215-0366(20)30168-1
Huang, H.M., Jen, Y.C., & Lien, Y.F. (2016). Stigma experienced by caregivers of patients with schizophrenia: A qualitative study. International Journal of Nursing & Clinical Practices, 3, 182. doi: 10.15344/2394-4978/2016/182
Keliat, B.A., Marliana, T., Windarwati, H.D., Mubin, M.F., Sodikin, M.A., Kristianingsih, T., . . . Kembaren, L. (2020). Dukungan Kesehatan Jiwa dan psikososial (Mental health and psychosocial support) COVID-19: Keperawatan jiwa (1st ed.). Depok: FIK-UI.
Koujalgi, S.R., & Patil, S.R. (2013). Family burden in patient with schizophrenia and depressive disorder: A comparative study. Indian J Psychol Med, 35:251. doi: 10.4103/0253-7176.119475
Laila, N.H., Mahkota, R., Krianto, T., & Shivalli, S. (2018). Preception about pasung (physical restraint and confinement) of schizophrenia patients: A qualitative study among family members and other key stakeholders in Bogor Regency, West Java Province, Indonesia 2017. International Journal of Mental Health System, 12(35), 1-7. doi: 10.1186/s13033-018-0216-0
Laila, N.H., Mahkota, R., Shivalli, S., Bantas, K., & Krianto, T. (2019). Factors associated with pasung (physical restraint and confinement) of schizophrenia patients in Bogor regency, West Java Province, Indonesia 2017. BMC Psychiatry, 19(162), 1-8. doi: 10.1186/s12888-019-2138-z
Madathumkovilakath, N.B., Kizhakkeppattu, S., Thekekunnath, S., & Kazhungil, F. (2018). Coping strategies of caregivers towards aggressive behaviors of persons with severe mental illness. Asian Journal of Psychiatry, 35, 29-33. doi: 10.1016/j.ajp.2018.04.032
Mantovani, L.M., Ferretjans, R., Marçal, I.M., Oliveira, A.M., Guimarães, F.C., & Salgado, J.V. (2016). Family burden in schizophrenia: The influence of age of onset and negative symptoms. Trends Psychiatry Psychother, 38(2), 96-99. doi: 10.1590/2237-6089-2015-0082
Menteri Kesehatan Republik Indonesia. (2017). Peraturan Menteri Kesehatan Republik Indonesia No. 54 tahun 2017 tentang Penanggulangan pemasungan pada orang dengan gangguan jiwa. Jakarta: Kementerian Kesehatan Republik Indonesia.
Nihayati, H.E., Mukhalladah, D.A., & Krisnana, I. (2016). Pengalaman keluarga merawat klien gangguan jiwa pasca pasung. Jurnal Ners, 11(2), 283-287. doi: 10.20473/jn.v11i2.2988
Nurhayati, N.P., Widjanarko, B., & Nugraheni, S.A. (2020). Determinant factors that influence in the installation of people with the soul disorders in the Brebes District (Study of family members who have mental illness pasung). The International Journal of Health, Education and Social (IJHES), 3(5), 1-16.
Puteh, I., Marthoenis, M., & Minas, H. (2011). Aceh Free Pasung: Releasing the mentally ill from physical restraint. Imternational Journal of Mental Health Systems, 5(10), 1-5. doi: 10.1186/1752-4458-5-10
Repišti, S., Jovanović, N., Kuzman, M.R., Medved, S., Jerotić, S., Ribić, E., . . . Russo, M. (2020). How to measure the impact of the COVID-19 pandemic on quality of life: COV19-QoL - the development, reliability and validity of a new scale. Global Psychiatry, 3(2), 1-10. doi: 10.2478/gp-2020-0016
Sharma, R., Sharma, S.C., & Pradhan, S.N. (2017). Assessing caregiver burden in caregivers of patients with schizophrenia and bipolar affective disorder in Kathmandu Medical College. J Nepal Health Res Counc, 15(37), 258-263. doi: 10.3126/jnhrc.v15i3.18851
Shrestha, Y. (2018). Knowledge and attitude of family member of mentally ill patient regarding restraint, 2016. Archives of Psychiatric Nursing, 32, 297-299. doi: 10.1016/j.apnu.2017.11.018
Souza, A.L.R., Guimarães, R.A., Vilela, D.D.A., Assis, R.M.D, Oliveira, L.M.D.A.C., Souza, M.R., . . . Barbosa, M.A. (2017). Factors associated with the burden of family caregivers of patients with mental disorders: a cross-sectional study. BMC Psychiatry, 17(353), 1-10. doi: 10.1186/s12888-017-1501-1
Subu, M.A., Holmes, D., & Elliot, J. (2016). Stigmatisasi dan perilaku kekerasan pada orang dengan gangguan jiwa (ODGJ) di Indonesia. Jurnal Keperawatan Indonesia, 19(3), 191-199. doi: 10.7454/jki.v19i3.481
Torales, J., O’Higgins, M., Castaldelli-Maia, J.M., & Ventriglio, A. (2020). The outbreak of COVID-19 coronavirus and its impact on global mental health. International Journal of Social Psychiatry, 00(0), 1-4. doi: DOI: 10.1177/0020764020915212
Venkatesh, B.T., Andrews, T., Parsekar, S.S., Singh, M.M., & Menon, N. (2015). Stigma and mental health-caregivers' perspective: A qualitative analysis. Clinical Epidemiology and Global Health, 4, 23-27. doi: 10.1016/j.cegh.2015.06.003
WHO. (2018). Schizophrenia. Retrieved 30 September, 2019, from https://www.who.int/news-room/fact-sheets/detail/schizophrenia
WHO. (2020). Catatan tentang aspek kesehatan jiwa dan psikososial wabah COVID-19 Versi 1.0. Retrieved 21 June, 2020, from https://www.who.int/docs/default-source/searo/indonesia/covid19/catatan-tentang-aspek-kesehatan-jiwa-dan-psikososial-wabah-covid-19-feb-2020-indonesian.pdf?sfvrsn=ebae5645_2
Wulandari, I.A.P., Daulima, N.H.C., & Wardani, I.Y. (2019). The fight against stigma in the recovery process of post-pasung mentally ill patients. Enfermería Clínica, 29(S2), 295-299. doi: 10.1016/j.enfcli.2019.04.037
Yu, Y., Liu, Z-w., Tang, B-w., Zhao, M., Liu, X-g., & Xiao, S-y. (2017). Reported family burden of schizophrenia patients in rural China. PLoS ONE, 12(6). doi: 10.1371/journal.pone.0179425
Yunita, F.C., Yusuf, A., Nihayati, H.E., & Hilfida, N.H. (2019). Coping strategies used by families in Indonesia when caring for patients with mental disorders post-pasung, based on a case study approach. General Psychiatry, 33:e100035. doi: 10.1136/gpsych-2018-100035
Yusuf, A., Tristiana, R.D., & Purwo, I. (2017). Fenomena pasung dan dukungan keluarga terhadap pasien gangguan jiwa pasca pasung. Jurnal Keperawatan Padjajaran, 5(3), 302-314. doi: 10.24198/jkp.v5i3.653
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