Coping with HIV Stigma among People Living with HIV in Yogyakarta, Indonesia: A Mixed-Methods Approach

Reni Puspitasari, Jerome V. Cleofas

= http://dx.doi.org/10.24990/injec.v6i1.311
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Abstract


Introduction: People living with HIV are related to experience stigma and discrimination. Stigma can disrupt mental health and PLHIV have coping strategies to overcome internalize stigma. This study aimed to describe how PLHIV cope with HIV stigma.

Methods: This study used explanatory design. The quantitative data were collected to describe the internalized HIV stigma with 100 participants using a questionnaire and analyzed using multiple regressions. The qualitative data from the second phase were used to build on or explain the qualitative data with 14 participants using purposive sampling method and analyzed using thematic analysis.

Results: The participants reported to have low extent of internalized HIV stigma (mean=1.80) and the highest item was feeling guilty (mean=2.2) using quantitative analysis. The demographic profile were not significant predictors of internalized HIV stigma. The result from qualitative analysis was the coping internalized HIV stigma among PLHIV divided by negative and positive coping stigma, such as emotional and cognitive coping, behavior coping, social coping.

Conclusion: PLHIV have low extent of internalized stigma. The coping internalized HIV stigma among PLHIV was divided by negative and positive coping stigma.


Keywords


coping; HIV/AIDS; Indonesia; mental health; stigma

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References


CDC (2019) Facts about HIV Stigma, CDC. Available at: https://www.cdc.gov/hiv/basics/hiv-stigma/index.html (Accessed: 16 September 2020).

Changing Minds (2017) Positive Coping, Changing Minds. Available at: http://changingminds.org/explanations/behaviors/coping/positive_coping.htm (Accessed: 2 November 2017).

Earnshaw, V. A. et al. (2014) ‘HIV Stigma and Physical Health Symptoms: Do Social Support, Adaptive Coping, and/or Identity Centrality Act as Resilience Resources?’, AIDS and Behavior, 19(1), pp. 41–49. doi: 10.1007/s10461-014-0758-3.

Emlet, C. A. et al. (2015) ‘The impact of HIV-related stigma on older and younger adults living with HIV disease: Does age matter?’, AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, 27(4), pp. 520–528. doi: 10.1080/09540121.2014.978734.

France, N. F. et al. (2015) ‘“An unspoken world of unspoken things”: A study identifying and exploring core beliefs underlying self-stigma among people living with HIV and AIDS in Ireland’, Swiss Medical Weekly, 145. doi: 10.4414/smw.2015.14113.

Garnefski, N., Kraaij, V. and Spinhoven, P. (2001) ‘Negative life events, cognitive emotion regulation and emotional problems’, Personality and Individual Differences, 30(8), pp. 1311–1327. doi: 10.1016/S0191-8869(00)00113-6.

Glover, L. (2016) 6 Reasons for Eating Healthy, Nerdwallet. Available at: nerdwallet.com/blog/health/benefits-of-eating-healthy/6/ (Accessed: 7 November 2017).

Gohain, Z. and Halliday, M. A. L. (2014) ‘Internalized HIV-Stigma, Mental Health, Coping and Perceived Social Support among People Living with HIV/AIDS in Aizawl District—A Pilot Study’, Psychology, 05(15), pp. 1794–1812. doi: 10.4236/psych.2014.515186.

Hardey, S. et al. (2019) Substance Abuse & HIV/AIDS, Amedican Addiction Center. Available at: https://americanaddictioncenters.org/health-complications-addiction/substance-abuse-hiv-aids (Accessed: 24 September 2020).

Hasan, M. T. et al. (2012) ‘Internalized HIV/AIDS-related stigma in a sample of HIV-positive people in Bangladesh’, Journal of Health, Population and Nutrition, 30(1), pp. 22–30. doi: 10.3329/jhpn.v30i1.11272.

Henson, S. M. et al. (2012) ‘Coping behaviour as an adaptation to stress: Post-disturbance preening in colonial seabirds’, Journal of Biological Dynamics, 6(1), pp. 17–37. doi: 10.1080/17513758.2011.605913.

HIV.Gov (2017) Talking About Your HIV Status., HIV.GOV. Available at: https://www.hiv.gov/hiv-basics/hiv-testing/just-diagnosed-whats-next/talking-about-your-hiv-status (Accessed: 2 November 2017).

Kim, J. et al. (2010) ‘The roles of social support and coping strategies in predicting breast cancer patients emotional well-being: Testing mediation and moderation models’, Journal of Health Psychology, 15(4), pp. 543–552. doi: 10.1177/1359105309355338.

Lavoie, S. (2015) Social Isolation and Depression: Effects & Definition, Study.com. Available at: https://study.com/academy/lesson/social-isolation-and-depression-effects-definition-quiz.html.

Lekas, H. M., Siegel, K. and Leider, J. (2011) ‘Felt and enacted stigma among HIV/HCV-Coinfected adults: The impact of stigma layering’, Qualitative Health Research. doi: 10.1177/1049732311405684.

Li, L., Lin, C. and Ji, G. (2017) ‘Gendered aspects of perceived and internalized HIV-related stigma in China’, Women and Health, 57(9), pp. 1031–1043. doi: 10.1080/03630242.2016.1235075.

Mo, P. K. H. and Ng, C. T. Y. (2017) ‘Stigmatization among people living with HIV in Hong Kong: A qualitative study’, Health Expectations, 20(5), pp. 943–951. doi: 10.1111/hex.12535.

Musheke, M., Bond, V. and Merten, S. (2013) ‘Self-care practices and experiences of people living with HIV not receiving antiretroviral therapy in an urban community of Lusaka, Zambia: Implications for HIV treatment programmes’, AIDS Research and Therapy, 10(1). doi: 10.1186/1742-6405-10-12.

Pantelic, M. et al. (2017) ‘HIV, violence, blame and shame: Pathways of risk to internalized HIV stigma among South African adolescents living with HIV: Pathways’, Journal of the International AIDS Society, 20(1). doi: 10.7448/IAS.20.1.21771.

Polit, D. F. and Beck, C. T. (2012) Generating and Assessing Evidance for Nursing Practice, Resource Manual for Nursing Research.

Puspitasari, R. and Kustanti, C. Y. (2019) ‘Studi Kualitatif Perilaku (Pengetahuan, Sikap, dan Tindakan) Pencegahan HIVAIDS pada Wanita Pekerja Seks di Bantul’, in Seminar Nasional Keperawatan; Nursing Leadership and Health Care Management. Jawa Tengah: STIKES Muhammadiyah Klaten, pp. 24–29. Available at: https://repo.stikesbethesda.ac.id/74/.

Rapp, S. R., Cottrell, C. A. and Leary, M. R. (2001) ‘Social coping strategies associated with quality of life decrements among psoriasis patients’, British Journal of Dermatology, 145(4), pp. 610–616. doi: 10.1046/j.1365-2133.2001.04444.x.

Sheridan, N. et al. (2011) ‘Helplessness, self blame and faith may impact on self management in COPD: A qualitative study’, Primary Care Respiratory Journal, 20(3), pp. 307–314. doi: 10.4104/pcrj.2011.00035.

Shrivastava, A., Johnston, M. and Bureau, Y. (2012) ‘Stigma of Mental Illness-1: Clinical reflections’, Mens Sana Monographs. doi: 10.4103/0973-1229.90181.

Skilled At Life (2017) Why Hobbies Are Important, SkilledAtLife.com. Available at: http://www.skilledatlife.com/why-hobbies-are-important/ (Accessed: 7 November 2017).

Slavin, S. et al. (2011) The HIV Stigma Audit Community Report. Australia. Available at: https://napwha.org.au/files/napwa_stigma_audit_report.pdf.

Ssali, S. N. et al. (2010) ‘Reasons for disclosure of HIV status by people living with HIV/AIDS and in HIV care in Uganda: An exploratory study’, AIDS Patient Care and STDs. doi: 10.1089/apc.2010.0062.

U.S. Department of Veterans Affairs (2020) PTSD: National Center for PTSD. Available at: https://www.ptsd.va.gov/gethelp/negative_coping.asp (Accessed: 24 September 2020).

Webel, A. R. et al. (2014) ‘Age, stress, and isolation in older adults living with HIV’, AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, 26(5), pp. 523–531. doi: 10.1080/09540121.2013.845288.

WHO (2020) Indonesia statistics summary (2002 - present). Available at: https://apps.who.int/gho/data/node.country.country-IDN (Accessed: 24 September 2020).

WYG (2017) Grief and Negative Coping. Available at: https://whatsyourgrief.com/grief-and-negative-coping/ (Accessed: 2 November 2017).

Zhang, Y. X. et al. (2014) ‘Coping strategies for HIV-related stigma in Liuzhou, China’, AIDS and Behavior. doi: 10.1007/s10461-013-0662-2.


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