The Parents’ Perception Having Children with Intellectual Disabilities Provided with Sex Education

Dwi Karina Ariadni, Yayi Suryo Prabandari, Sumarni DW

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Introduction: Children with intellectual disabilities have the same sexual needs as non-disabled children. Parents are their child’s primary sex educator, but many parents are afraid of talking to their children about sex. The purpose of this study was to explore the perception of parents when providing sex education to children with intellectual disabilities. Methods: the study was qualitative research conducted using a phenomenological approach. The data collection used focus group discussions (FGDs) and in-depth interviews (face-to-face) with ten parents who had children with mild or moderate intellectual disability, aged nine-eighteen years registered at one of public school for children with special needs in Yogyakarta. Results: Four themes were found; the importance of sex education for children with an intellectual disability, the mother has the most crucial role in providing sex education, the distinction of sex education for children with intellectual disability and religion is essential in sex education. Conclusions: The role of the parents, especially the mother, is significant to provide sex education; more so than the father. The parents should be delivered earlier sex education to protect them from sex abuse.

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Balding, J. (1999). Health Related Behaviour Questionnaire (Version 21). Exeter: Schools Health Education Unit.

Ballan, M.S. (2012). Parental Perspectives of Communication about Sexuality in Families of Children with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders. 42: 676–684.

Directorate of Child Health Development. (2011). Guidelines for Child Health Services at Special Schools (SLB) for Health Officers. Jakarta : Ministry of Health RI.

Dupras, A., and Dionne, H. (2014). The Concern of Parents regarding the sexuality of Their Child with a Mild Intellectual Disability. Sexologies. 23: e79-e83

Farrag, S. and Hayter, M. (2014). A Qualitative Study of Egyptian School Nurses’ Attitudes and Experiences toward Sex and Relationship Education. The Journal of School Nursing. 30: 49–56.

Fentahun, N., Assefa, T., Alemseged, F., and Ambaw, F. (2012).Parents’ Perception, Students’ and Teachers’ Attitude towards School Sex Education. Ethiopian Journal of Health Sciences. 22: 99– 106

Gunarsa, S.D. (1991). PsikologiPraktis: Anak, Remaja dan Keluarga.Jakarta :Gunung Mulia.

Gurol, A., Polat, S., and Oran, T. (2014).Views of Mothers Having Children with Intellectual Disability Regarding Sexual Education : A Qualitative Study. Sexuality and Disability. 32: 123-133.

Irianto, K. (2014). Seksologi Kesehatan. Bandung: Alfabeta.

Isler, A., Beytut, D., Tas, F., and Conk, Z. (2009).A Study on Sexuality with the Parents of Adolescents with Intellectual Disability. Sexuality and Disability. 27: 229–237

Izugbara, C.O. (2008). Home-Based Sexuality Education Nigerian Parents Discussing Sex With Their Children. Youth & Society. 39. 575–600

Katz, G., and Ponce, E. L. (2008). Sexuality in Subjects with Intellectual Disability An Educational Intervention Proposal for Parents and Counselors in Developing Countries. Salud Publica Mex. 50: S239-S254.

Lawrence, J., Kanabus, A., and Regis, D. A (2000). Survey of Sex Education Provision in Secondary Schools. West Sussex: AVERT (AIDS Education & Research Trust).

Ministry of Women Empowerment and Child Protection. (2013). Children Profile of Indonesia. Ministry of Women Empowerment and Child Protection (KPP&PA): Jakarta 2010.

Ministry of Health RI (2010). Riset Kesehatan Dasar. Ministry of Health RI: Jakarta. 2010.

Swango-Wilson, A. (2011).Caregiver Perceptions and Implications for Sex Education for Individuals with Intellectual and Developmental Disabilities. Sexuality and Disability. 26: 167–174

Sweeney, L. (2008). Human Sexuality Education for Students with Special Needs. NASN Newsletter. 23: 21–22.

Walker, J.L. (2001). A Qualitative Study of Parents' Experiences of Providing Sex Education for Their Children: The Implications for Health Education. Health Education Journal. 60. 132–146

Wilson, E.K., Dalberth, B.T., Koo, H.P., et al. (2010). Parents‟ Perspectives on Talking to Preteenage Children about Sex.Perspectives on Sexual and Reproductive Health.42,56–63.


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